Rare Genetic Disorder Today's Micro Preemie Monday story is a little different. Not only did this sweet preemie have to fight to survive an early birth, and all the complications that come with that, but it is now known that he is also fighting a rare genetic disorder. His mother, Jenevieve, reached out to me in order to share her son Matthew's story. It is such a rare … [Read more...]
Micro Preemie Updates: Homecoming Stories
Micro Preemie Updates I'm so happy to be able to bring you some wonderful micro preemie updates today. I try to follow-up with the beautiful fighters we meet on Micro Preemie Monday. When I read about a few homecomings, I wanted to share the happy news with you. Along with some adorable pictures. Having a lot of Faith We first met Faith on the blog at the end of July. … [Read more...]
Smallest preemies/Biggest fighters, Amari’s Story
One of the Smallest Preemies Take your soda can or water bottle and pick it up. Now, hold it in your arms like a baby. Can you imagine a baby weighing less than that? Today's mother, Rodericka, didn't have to imagine it. She gave birth to one of the smallest preemies we've featured on Micro Preemie Mondays. As we all know, the smallest preemies are often the strongest … [Read more...]
Little celebrations, Kaleb’s story
Little Celebrations There is never a typical day in the NICU. Each day brings new challenges, and unexpected developments, but it can also be a time for little celebrations. Those little celebrations can help you get through each day, and really give you hope when you need some. I remember when my little P finally opened just one of his eyes, I was ecstatic. Both of his … [Read more...]
A Rare syndrome, Nova’s follow-up story
Rare Syndrome When you hear statistics like 1 in 3000, or words like "extremely rare," you think it will never happen to you or your family. However, when you've gone through something like premature birth or a NICU stay, you find out that "rare" isn't always as rare as you think. Before I had my twins at 25 weeks, I had never met another premature baby or even known what … [Read more...]
