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You are here: Home / Micro Preemie Mondays / Micro Preemie Monday and Cambria

Micro Preemie Monday and Cambria

June 15, 2015 By Shann 16 Comments

Micro Preemie

Welcome to our 3rd Micro Preemie Monday!  I’m so happy you are here with us to meet a beautiful little girl named Cambria.  Her mother, Becky, tells us all about her and her story. Please feel free to leave Becky comments or ask questions, and I will get them to her.

At the end, I have included some additional information on terms* you may not be familiar with.

1.Tell us about your baby

Cambria was born at 27 6/7 weeks, she weighed 1 lb 5 oz and was and is considered SGA (Small for Gestational Age,)* and IUGR (Intrauterine Growth Restriction.)* She weighed and measured around 23 weeks.

2. How long was your NICU stay?  What was the hardest part?

We were in the NICU non-stop for 95 days, however, she was readmitted 4 times within 3 days of getting released initially. The hardest part was not knowing what to expect. We had never known of anyone with such a small or early baby and were facing this with no knowledge. I have since found many support groups. however, I was overwhelmed with my lack of knowledge and found it essential to arm myself with as much knowledge as possible.

Baby cambria
3.Do you know what caused your baby’s prematurity?

Placental abruption*

Cambria trach

4. How are you and your baby doing today? 

I am doing just fine. Cambria has some lasting issues. She has an immune deficiency that we give her bi-weekly infusions for, this is especially concerning because she is still so small. Which is another concern. She weighs 20 pounds and is 32″ tall and will be four in July. We are waiting on approval for human growth hormone. She has lasting chronic lung issues, and as I type this she is battling pneumonia in the hospital. She takes nebulizers daily. She also has speech and fine motor delays, but is making great strides in this area and we are so proud of her. She is happy and doing so much better than we ever thought she would. She spent many months in a PICU (Pediatric Intensive Care Unit) seven hours from home and ended up with a Trach* and feeding tube. She runs and plays and is so full of joy we couldn’t be more blessed. These issues are small in comparison to what we were told her issues would be. She is amazing.

Cambria2

5. What advice would you give to a new Micro preemie mom?  

Take one day at a time. If you think about a week from now, two weeks from now, even a year from now you will drive yourself nuts. Medicine isn’t an exact science and the doctors don’t know for sure what will be. We were told she would never come off a ventilator and would never get rid of the trach or eat by herself. She rarely uses a nasal canula, has no trach, and puts away food like nobody’s business. Let the little things go, don’t consume yourself with a nurse that didn’t lay the blanket right or didn’t acknowledge you within minutes. You will drive yourself crazy if you don’t find a happy medium. Also, educate yourself on the terms, condtions, etc. Ask questions and above else, advocate for your little one!

*From The Children’s Hospital of Wisconsin Website

SGA and IUGR

Intrauterine growth restriction (IUGR) is a term used to describe a condition in which the fetus is smaller than expected for the number of weeks of pregnancy. Another term for IUGR is fetal growth restriction. Newborn babies with IUGR are often described as small for gestational age (SGA). 

Placental Abruption

Placental abruption is the premature separation of a placenta from its implantation in the uterus. Within the placenta are many blood vessels that allow the transfer of nutrients to the fetus from the mother. If the placenta begins to detach during pregnancy, there is bleeding from these vessels. The larger the area that detaches, the greater the amount of bleeding. Placental abruption occurs about once in every 120 births. It is also called abruptio placenta.

Other than direct trauma to the uterus such as in a motor vehicle accident, the cause of placental abruption is unknown.

Trach

Short for tracheostomy tube. An opening in the windpipe or trachea for breathing through with a tube instead of breathing through the nose or mouth.

Filed Under: Micro Preemie Mondays, Prematurity Tagged With: immune system, iugr, micro preemie, NICU, picu, preemie, premature birth, sga, small for gestational age, trach

Comments

  1. Sara (@mommysummers) says

    June 15, 2015 at 9:28 am

    What a beautiful little girl & what an amazing momma you are! “Take it one day at a time.” is such great advice to give to any mom! Happy Monday!

    Reply
  2. Pellerini Proclaims says

    June 15, 2015 at 9:30 am

    Cambria is a beautiful little girl!

    Reply
  3. Tiara says

    June 15, 2015 at 9:59 am

    Your daughter is so freaking cute!
    Oh so precious! I can just look at her smile & it makes me smile 🙂

    Reply
  4. Alexandra says

    June 15, 2015 at 10:09 am

    Such a beautiful little love – and such a strong, brave momma she has! Thank you for sharing their story and thank you for your very sweet comment on my blog, by the way!

    Warm Regards,
    Alexandra
    http://www.littlewildheart.com

    Reply
    • Shann says

      June 15, 2015 at 10:18 am

      You’re welcome! And thank you for reading Cambria’s story. 🙂

      Reply
  5. Brittany Bergman says

    June 15, 2015 at 1:29 pm

    What a beautiful little lady! Thanks for sharing her story (and yours). I’m sure this is going to be such an encouragement for other mothers of preemie darlings.

    Reply
  6. Alyssa from The Sparkly Life says

    June 15, 2015 at 3:18 pm

    oh my gosh! What an amazing story. I can’t believe how tiny she was at birth! And she is beautiful, beautiful girl. Loved reading this.

    Reply
  7. Alana says

    June 15, 2015 at 3:52 pm

    This advice for moms of micropreemies is great. One of my good friends is in the thick of it. They’re on their fourth very extended hospital stay of her daughter’s life. It breaks my heart and fills me with hope all at the same time.

    Reply
    • Shann says

      June 15, 2015 at 6:48 pm

      If they ever need any support, please let me know Alana.

      Reply
  8. Dina Farmer says

    June 15, 2015 at 6:13 pm

    Please let the family know about Preemie Prints (www.preemieeprints.org)! It is an organization I am a part of that gives the gift of photography to families with children in the NICU/PICU up to a year old.

    I don’t have a micro preemie but I do have a preemie at home although with how bit he is now no one would believe me. My baby was born at 33 weeks.

    I’m glad that Cambria is making so many strides and I hope she continues to grow stronger and more wonderful each day!

    Reply
    • Shann says

      June 15, 2015 at 6:48 pm

      That’s awesome! I tried to find a photographer in my area when my guys were little, but never did. I’ll make sure she looks that up. I’m glad your baby is doing well too!

      Reply
  9. almostsexymommy says

    June 16, 2015 at 10:40 am

    What a beautiful little girl! I hope she feels better soon!

    Reply
  10. The Trophy WifeStyle says

    June 16, 2015 at 2:51 pm

    Omg!!! Your little one is just wayyy too cute :):) what a brave mama :):)

    Reply
  11. M from The Stay-at-Home Life says

    June 16, 2015 at 8:42 pm

    Oh my goodness! So tiny and adorable! I am glad she’s doing well. 🙂

    Reply
  12. caitlincheevers says

    June 17, 2015 at 10:18 am

    What a startling time that must have been! I can’t imagine the stress your family has gone through. I’m so glad she’s doing well, though, and she’s absolutely beautiful!
    xo, Caitlin
    And Possibly Dinosaurs

    Reply
  13. Sophia C says

    June 22, 2015 at 9:29 am

    She is so beautiful! I hope you get approval for the growth assistance you are seeking! You are totally right about not sweating the small stuff…. Especially when there’s so many larger issues to deal with. My girls are 20 months and one is about 25lbs and the other is about 19lbs, I couldn’t imagine a 4 year old that size 🙂 but she is absolutely precious!

    Reply

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Meet Shann

Shann Hi! I'm a mom, writer, and dancer. I love sharing my parenting experiences, my healthy living tips, my money saving ideas, and our travel plans. My passion to help other women inspired this blog. I hope you'll stay a while and come back often.

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