Welcome to Micro Preemie Monday!
Today we meet Annie, as told by her Mom, Rosie. Annie has defied Doctor’s predictions, and is a very talented young lady. Let’s meet her.
1. Tell us about your baby.
Annie was born at 24 weeks, weighing 394 grams 11 inches long.
2. How long was your NICU stay? What was the hardest part?
The total hospital stay was 8 months, with a one week discharge and straight back for 2 months.
For me, the hardest part was so many different things. There wasn’t just one thing that was hard. The first time I saw her. The not being able to see her because they were working on another baby. Her coding blue while I’m watching her and not knowing what the outcome would be. Not being able to hold her for months or touch her for months, just sit there and stare into the porthole of the incubator.
We were told if she lived past birth, she would not walk, talk, sit, crawl, stand, or walk. She would just be a baby laying there. She proved that doctor wrong on more than one occasion!
3. Do you know what caused your premature birth?
To this day no one can tell me why or what happened. I had an ultrasound 12 days prior to her emergency delivery and everything was fine. All of a sudden she was living in no fluid and has lost weight to what a 22 week fetus would weigh, but no one has answers.
4. How are you and your baby doing now?
Annie had to end up having a tracheotomy and a feeding tube and was diagnosed with SGA (Small for Gestational Age,) FTT (Failure to Thrive,) RSS (Russell Silvers Syndrome, a growth disorder) CLD (Chronic Lung Disease,) paralyzed Vocal Cords, Scoliosis, and Spinal Bifida Occulta. She had 27 surgeries and 48 hospital admits (not including over night stays.) That is just the number of how many times they’ve put a band on her wrist and admitted her overnight . All of her surgeries were based on her airway, except for 5, and they were based on her stomach.
As for how we are doing now, my daughter turned 14 in June. She’s tiny, spunky, a firecracker, and has a temper from hades. She’s doing everything every doctor said she wouldn’t do, and I’ve become the proudest mom on earth watching her over achieve.
She’s free from all tubes only needs O2 when she exercises or has been running. Like for instance, she was a competitive cheerleader (flyer) and they do rigorous routines, and she would need the O2 after performing for about 10 minutes. Then, she was good to go!
She’s enjoys drawing and doing special effects makeup too she had to give up cheer due to her back starting to give her problems. Here is some of her work:
5. What advice would you give to new preemie parents.
My advise for families of micro preemies is that this is the time that your kids and grand children need you the most. Be there for them. If it’s just to drop food off or if your micro preemie grandchild scares you or your micro preemie niece and or nephew scares you, think what the heck is going on in the mind of you brother or sister or your child’s head right now. Don’t walk away from them when they need you the most.
My advice to parents is that it is a roller coaster of emotions. Don’t get me wrong, your child will have good days and bad. The day that you are past all of this and can look back and be where we are today, offering advice and tips. Even go and volunteer at the local children’s hospital. You would not believe how many children do not have parents that do not stay with them 24/7
Thank you so much to Rosie for sharing Annie with us, and to Annie for sharing her amazing artwork and make-up work. I can see why Rosie is one proud mom!