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You are here: Home / Blog / Micro Preemie Update: Lucky and Adiana

Micro Preemie Update: Lucky and Adiana

March 24, 2017 By Shann 7 Comments

Micro Preemie Update

Even though I have never met any of our Micro Preemie miracle babies in person (with the exception of my own twins, obviously) I still become invested in each one. I love to get messages and read updates on them. I also have become Facebook friends with many families, so I am able to see them as they grow and change. Today, I’m so honored to bring you a Micro Preemie Update on two of our sweet fighters.

Even when you are released from the NICU, there can be so many uncertainties with a preemie. There are still follow-up appointments, therapy sessions, and developmental analysis. Even at 4-years-old, my twins are still followed by various doctors and therapists. We just went to the eye doctor this week, and they will be starting new therapies next week.

Prematurity can really have lifelong effects.

Today, we will check in on Luck Ball and Adiana. As with all preemies, each of their stories and outcomes are unique. However, they are both so strong and beautiful. I’m so honored to be able to bring you this Micro Preemie Update.

Check in on both Lucky and Adiana with our micro preemie update. Premature birth awareness does not stop at birth.

Lucky Ball

When we first met Lucky, he was still in the NICU, after being born at 24 weeks, 4 days. Here is the micro preemie update from his mom, Holly.

 Premature birth awareness doesn't stop. Here is a Micro Preemie Update.
Our little 24 week preemie Lucky is now 17 months old. A lot has changed in a year.
Micro Preemie update Lucky
He’s now blind from his brain bleeds, he has Hydrocephalus, and a VP Shunt. Lucky is unable to sit up, hold head up, roll, crawl, stand or walk.
Micro Preemie update
He’s getting a wheelchair this week, and we are hoping it will help with his development. Lucky is at a 3-6 month development level.
micro preemie update
He got his wheelchair!
With everything Lucky has to deal with, he was just diagnosed with Infantile Spasms (IS) or West’s Syndrome. It’s a severe form of seizures that affect babies, and unfortunately there’s still a lot to learn about IS. So, trying to cure, or just control them, has already become a challenge. IS can also cause many long term health issues, as well.
I’m now on a mission to get my story heard, not just for me, but to help prematurity awareness and all children that have a special illness or special need. My husband and I have a dream one day soon of owning some land so we can own a goat farm. We would love to open a special needs day camp for ALL children with any type of health issues, special needs, or disability to enjoy the farm animals, interact with other children, and be able to enjoy nature.
I just want to be my son’s voice, a voice for kids that don’t have one. He’s a miracle, and he deserves to be heard. It’s time for things to get a little easier for parents of children with special needs, so we can focus on their health and well-being.

Adiana

We first met Adiana, a 28 weeker, after she had been home from the NICU for a year. Please catch up with her in her micro preemie update, as told by her mom, Adrienne.

micro preemie update Adiana

My daughter Adiana was born at 28 weeks, weighing 1 lb 15 oz. She stayed in the NICU for 2 months. Adiana was our rainbow baby after suffering a ectopic pregnancy our first pregnancy. I had severe pre-e, high blood pressure and she wasn’t growing as she needed to be.

She is 2 years old today, and will be 3 in May.

Adiana micro preemie update

She is truly our little angel and our blessing. Thankfully, she is hitting every milestone and she doesn’t have any medical needs or delays.

At times I get this feeling of just so much thankfulness when thinking about our journey. She amazes me each and everyday. She is so smart and a quick learner. I have already started to potty train, and she is catching on quick. I’m just so grateful for her.

micro preemie update

Before having her I didn’t know much about Premature birth. I have learned so much since I have experienced it for myself. I can say, when she came home almost 3 years ago, I was so nervous and anxious, but I let that go, and now she can be a kid and just living and enjoying life.

Awareness

While they are in different places in their journeys, both Lucky and Adiana have made such progress from where they started. They have also both taught their parents so much about what it means to be a preemie parent. Being born premature is such a difficult way to start life, but it truly turns these babies into fighters. Their strength and determination deserves to be shared, so I’m glad that I could bring you these updates.

Premature birth awareness doesn’t stop for any of us preemie parents. It is a lifelong commitment to something we never wanted to experience, yet has changed us and made us stronger. It also introduces you to people and support systems that you never would have met or needed otherwise. Now, you can’t imagine life without them.

If you have been featured on a Micro Preemie Monday, and would like to send in an update to be shared, please email me at shanneva@yahoo.com.

Also, Lucky’s family has a Facebook Page where you can follow along with his progress, learn about fundraisers, and more by clicking HERE.

Thank you so much to Holly and Adrienne for sharing their precious, beautiful children with me and all my readers. Please feel free to share this post to help spread premature birth awareness. Also, leave any questions or comments of support below for both Adiana and Lucky.

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Filed Under: Blog, Micro Preemie Mondays, Prematurity Tagged With: 24 weeker, 28 weeker, Adiana, blindness, disability, health issues, Infantile Spasms, Lucky, micro preemie, micro preemie monday, NICU, preemie, premature birth awareness, seizures, Special needs, VP shunt, West's syndrome

Comments

  1. Christine Cox says

    March 24, 2017 at 2:28 pm

    Oh Lucky….he is just the cutest thing! I want to just cuddle him. I feel for these parents. Such a struggle from day 1. No breaks. It is tough but thanks to your blog you are bringing parents together with others and helping to spread the word. THANK YOU!

    Reply
    • Shann Eva says

      March 27, 2017 at 12:09 pm

      And thank you Christine! You’re such a wonderful support!

      Reply
  2. shelah moss says

    March 24, 2017 at 5:07 pm

    What adorable children! They are truly miracles. I am so grateful for the medical advances that made their lives possible.

    Reply
  3. Lindsay @ The Flynnigans says

    March 25, 2017 at 8:14 pm

    Both stories are incredible. Lucky though, wow that touched me. He’s such a special little boy. I liked his FB page. Thanks so much for sharing hun.

    Reply
    • Shann Eva says

      March 27, 2017 at 12:08 pm

      Thank you so much Lindsay!

      Reply
  4. Krystal Miller says

    March 26, 2017 at 6:07 pm

    I remember reading about a couple of these babies before! Thanks so much for providing updates. I’m always curious how they’re progressing.

    Reply
  5. Chelsea Helm says

    March 26, 2017 at 8:23 pm

    such an interesting read! Thank you for sharing their journey

    Reply

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Meet Shann

Shann Hi! I'm a mom, writer, and dancer. I love sharing my parenting experiences, my healthy living tips, my money saving ideas, and our travel plans. My passion to help other women inspired this blog. I hope you'll stay a while and come back often.

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