Strength that can’t be measured
Every Monday, I am in awe of the strength that our preemies show as they fight to survive. I am just as in awe of their mothers’ strength. Not only are they emotionally strong for their children as they fight, but they are physically strong. In order to stay pregnant, they will make any sacrifices for their own physical comfort. Whether it be bedrest, a special diet, a surgical procedure, or just enduring pain, these preemie moms are amazing.
Now, I think all moms are remarkable and strong, but preemie moms face special challenges, and they face them without question.
Today, I’m sharing Amanda’s experience with premature birth. You’ll read about the sacrifices she made to try to keep her daughter from being born as long as possible. Her strength is inspiring, and I’m so happy she shared her story and her beautiful daughter with us today.
1. Tell us about your baby.
My daughter’s name is Lillian Marie but we call her Lilly. She was born at 25 weeks, 6 days, and weighed 1 lb 12 oz and was 13 inches long. She had a rough start and was given a 16% chance of survival. She was a fighter though, and came out breathing on her own.
2. How long was your NICU stay? What was the hardest part?
Lilly spent 82 days in the NICU and another 10 days in the PICU (Pediatric Intensive Care unit.) The hardest part was having to leave her, as we lived an hour away. I felt as if every time I left I was abandoning my child. I blamed myself tremendously. Lilly has been hospitalized 6 times in the last year.
3.Do you know what caused your Premature Birth?
I spent 97 % of my pregnancy on strict hospitalized bed rest in Trendelenburg position (flat on back with feet higher than the head.) Lilly was born due to incompetent cervix (funneling and non measurable) bulging membranes and PPROM (Preterm Premature Rupture of Membranes.) I was in labor for 120 hours (No meds) before having an emergency c-section.
4. How is Lilly doing now?
Lilly is now 20 months and weighs 17 lbs and is 30″ tall. She has been fully caught up developmentally since 15 months, She has severe failure to thrive but has been doing very well on donor milk. All in all she is a normal 1 and 1/2 year old.
5.What advice would you give to a new preemie parent?
Advice I’d give a new preemie Mom is that this to shall pass, the sleepless nights, the beeping alarms, the constant worry if your child is still breathing will one day be a memory and that you should always hold your head up high! Remember anyone can raise a baby, it takes a special woman to raise a preemie
I could not agree more, Amanda. Please leave any comments of support for Amanda and Lilly below.