TTTS, SIUGR, and Premature Birth
Since December is Twin to Twin Transfusion Syndrome (TTTS) Awareness Month, I wanted to bring you a special Micro Preemie story that is close to my heart. If you’ve been a long-time reader of my blog, then you know my twins suffered from TTTS, SIUGR, and an extremely premature birth.
Today’s micro preemie twins fought a similar battle, but of course, their journey is all their own.
As a part of the TTTS, SIUGR (Selective Intrauterine Growth Restriction) community and support groups, I have actually followed today’s family’s journey from the very beginning. It is a truly amazing story, and I’m so happy to be able to share it with you to raise awareness for all three of these conditions.
In case you are not familiar:
From www.tttsfoundation.org, Twin to Twin Transfusion Syndrome (TTTS) is a disease of the placenta (or afterbirth) that affects identical twin pregnancies. TTTS affects identical twins (or higher multiple gestations), who share a common monochorionic placenta.
From www.chop.edu, Selective intrauterine growth restriction (SIUGR) occurs when there is unequal placental sharing which leads to suboptimal growth of one twin. In cases of sIUGR, the estimated fetal weight of the smaller, growth-restricted twin usually falls below the 10th percentile. This will usually result in more than a 25 percent weight difference between the twins.
Now, let’s meet Identical twins Rachel and Evelyn, as told by their Dad, Neil.
Rachel and Evelyn
1. Tell us about your babies
2. How long was your NICU stay? What was the hardest part?
3. Do you know what caused your baby’s prematurity?
4. How are you and your babies doing today?
5. What advice would you give to a new Micro preemie parent?
Thank you so much to Neil and his family for sharing their story and their beautiful girls. They are truly miracles.
If you, or someone you know, is pregnant with twins, early monitoring is key. It is so important to find out if they are sharing a placenta, and to find a Maternal Fetal Medicine Specialist. Twin pregnancies can be very complicated, so please get all the information you can.
To find out more please visit The Twin to Twin Transfusion Syndrome Foundation Website or their Facebook Page.
Please leave any supportive comments for Neil, Rachel, and Evelyn below.