Micro Preemie Monday
Thank you for joining us for another Micro Preemie Monday, and another story of hope. If you missed any recent Mondays, you can catch up and read Charlotte’s story HERE, and then you can get updates on some of our past families HERE and HERE.
Today, we meet not one, but two preemies. They are a set of identical twins almost born at the same gestation as my boys. Here is their Mom, Marilu, to tell you all about her boys. All pictures are courtesy of Marilu.
1. Tell us about your Micro Preemies
My identical twin boys, Nicolas Javier and Lucas Rafael were born on December 16th, 2014 at 25 weeks and 3 days gestation. Nicolas weighed 2 lbs 0.2 oz and Lucas weighed 2 lbs 0.5 oz.
2. How long was your NICU stay? What was the hardest part?
My boys were in the NICU for 120 days, we were truly blessed to bring them both home on the same day. The hardest part for me was the feeling of helplessness that refused to go away and the guilt that ate away at me for so long. I felt like everything that happened was because of me and it has taken time for those feelings to subside.
3. Do you know what caused your premature birth?
No. I was seeing both an ob and a high risk specialist and neither could tell me what caused it, other than carrying twins.
4. How are you and your babies doing now?
I am doing infinitely better now that we are home, I still struggle with that guilt sometimes, particularly when something is wrong, but I couldn’t be happier. Our boys are doing great! They are chunks! They each weigh just under 20 lbs now and they are meeting all of their milestones.
5. What advice would you give to a new preemie parent?
It sucks. A lot of it just flat-out sucks and it’s horrible being there. You watch as your little one takes one step forward then two steps back and worst of all, you are afraid of hope. My advice to you, is don’t be afraid of hoping for a bright future because there is light at the end of the tunnel, it may just take a little while to reach it. So, don’t be afraid of hoping and give your little one all the love you can because that is what they need and deserve.
Thank you so much to Marilu for sharing her preemies with us. I know that many of us Preemie moms can relate to the guilt that Marilu felt. It’s so hard watching your baby struggle in the hospital. Even though it doesn’t feel like much, just being there and loving your baby/babies is enough.
If you are ever struggling with feelings from your premature birth, or know someone who is, and they need to talk, please send me an email. I can be reached at email@example.com. Sometimes, it helps to talk to someone who has been in a similar situation.
World Prematurity Day
I hope you’ll join me tomorrow when we celebrate World Prematurity Day. I have some special friends that are celebrating with me, and I also have advice on how you can help in the fight against Premature Birth.
You can still participate too! Just leave your picture of you wearing purple on my Facebook Wall, message it to me, or email it to me at firstname.lastname@example.org. Go #PurpleforPreemies