Micro Preemie Updates
Since I started Micro Preemie Mondays back in June, we’ve met over 20 families, each with a story to tell about Premature Birth. I checked in with the first 10 families in update posts, which you can read HERE and HERE. In honor of Premature Birth Awareness Month, today and tomorrow, I’m going to update you on 12 more of those families that we’ve met in the last few months. I hope you’re as excited as I am to see those beautiful faces again!
6 Family Updates
When we first met Parker, Molly, his mother told us how he was born at just 22 weeks, 6 days weighing only 1 lb 6 oz. We then saw him grow into an active 2-year-old, who was working on learning words, who loved to dance, but was having some sensory issues and did not like baby food very much.
Parker is now 2 1/2 yrs old, and slowly starting to eat table food. He goes to speech therapy and, according to his therapist, he says about 230 words! He weighs 24 pounds now, and he will be starting preschool next spring.
Daniel and Anna were born at a little over 24 weeks, weighing 1.7 and 1.6 lbs. When we first met them, they were 18 months, walking, babbling and eating.
Now, they are 21 months old. From their Mom, Demetra, Anna Maria and Daniel are doing great! They are running, playing, and having a blast, though they do not talk yet. They babble and understand when we talk to them. The are receiving Early Intervention 3 times a week. They are on no medication! He’s 24 pounds and she’s 23 lbs. They also eat all table foods! The are miracles!
Zachary was born at 26 weeks, 2 days, weighing 1 lb 11 oz. When we met first met Zachary, he 4 1/2 years old, and was about a year behind on development. His mother, Catherine, told us they thought he might have Hirschsprung disease, and he was on high calorie drinks to help him maintain his weight.
Zachary William will be turning 5-years-old at the end of November. Great news from his Mom is that he does not have Hirschsprung disease. They are, however, running more tests for Zachary such as thyroid, neurological tests, Celiac disease, iron, nutrition absorption, they are also checking to make sure he doesn’t have hidden Spina Bifida (they don’t think he has last one but they are checking just in case).
He now weighs 14.55 Kg, which is about 32 lbs and is 97 cm tall. He’s also started a home education program and its helped his learning a lot.
Also, pictured with Zachary is his new kitten, and his rabbit, which had babies!
Olivia was born at 24 weeks, 1 day, weighing 1 lb 12 oz. When we met Olivia, she was 14 months old and weighed 17 lbs. She no longer was on Oxygen, but did have a g-tube.
From her Mom, Shelby, Olivia is now 18 months old (14 adjusted) we still have the g-tube and have been working on her feeding skills, she finally started walking a few weeks ago and you know that made mommy cry!! She weighs 18 lbs 12 oz and is 27 inches long! She’s doing fantastic!! For Halloween she dressed up as a “little cow” and everyone loved it! She was adorable! We went trick or treating for the first time and got lots of candy, of course she really can’t eat any but we shared all the suckers with her! She is such a character and a joy to be around! She is a blessing to her family and a true miracle!
Adiana was born at 28 weeks, 2 days, weighing just 1 lb 15 oz. When we met Adiana, she was 1 year and 3 months old, weighing 18 lbs.
Now, from her Mom, Adrienne, Adiana is almost 21 lbs (from 1 lb 15 oz) and 17 months old. She is starting to talk more and more each day. She is so full of energy and really a joy to watch grow. She continues to catch up in weight with her peers. She is in a full-time daycare/school schedule so she loves to play with other children. She really amazes me each and everyday.
William Taylor was born at just 24 weeks, weighing 1 lb 1 oz. When we met William, he had just turned 19 years old. He just graduated from High School and had a full-time job.
His Mother, Jackie, asked William to share his own update. So, let’s hear from William.
My name is William … I go by Taylor. I’m 19 years old and live in East Tennessee. I have full-time job as a Houseman at a local motel and I volunteer with my church youth group as much as possible. Being a preemie to me means I belong to a very select group of people… Very unique. I have faced many challenges over my life even if I don’t remember them. The only way I know I’m a preemie is that I’ve seen pictures and heard stories. I am small for my age, I wear glasses and I still have some scars. But none of that bothers me at all. No need to complain about things that cannot be controlled. With the love and support of my friend and family I have been able to live a normal life. I was never allowed to use being small as an excuse. My family has always pushed me to be the very best I can be with no excuses. My favorite story from when I was born was when my great grandparents donated blood for me. They were in their 70’s at the time and had never donated blood. Afterwards they both came to the hospital to see me for the first time. They’ve both passed on now but I love knowing that they gave me blood and I know they’ll always be with me. I’ve blessed with a large family. I have 2 younger sister’s Maddie and Abbie and an older step sister Katelynn and 2 younger step brothers Matt and Bobby. I really enjoy life and I would say to any kids out there that are small to keep your heads up and stay positive. Being small isn’t the worst thing ever. I wouldn’t change anything about my life even if I could.
The one person that’s helped me the most on this earth is my mom Jackie. She is my longest and most successful relationship. She had been with me since day one and fought for everyday while I was sick. Even when they said I had no chance she believed in me. And for 19 years that has never changed. The one person I love to bug the most is my amazing step father Tim. He helps me with the challenges of becoming a young man and helps me learn how to be a good man. I look up to him and love him very much.
Thank you so much to Molly, Demetra, Catherine, Shelby, Adrienne, Jackie, and, of course, William Taylor, for sharing those amazing updates. It just made me so happy to read each update and see each picture. I can’t wait to check in with you all again soon.